
Hi, Welcome to
Adventures With Cancer
I'm a lucky guy. Yes, I have cancer.s But I've learned to appreciate everything around me so much more. I have a friend who once told me that "cancer is a gift wrapped in barbed wire" and it is true. I have learned so much, and am a better and happier person now then I was before.
I have two cancers, advanced PNET (Pancreatic Neuroendocrine Tumor) and Kidney Cancer (Renal Clear Cell Carcinoma). I am very lucky in that my symptoms are very light.
Neither cancer will ever stop me from living life's adventures!
My Timeline
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July 1, 2022 - Diagnosis dates for PNET and Renal Clear Cell Carcinoma (diagnosed at Providence St Vincent In Portland OR while admitted for Hepatic Encelapathy and Internal Bleeding)
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July 26, 2022 - First appointment with Dr. Guillaume Pegna, my NET specialist and Medical Oncologist at OHSU
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August 4, 2022 - First day of the first round of chemo - CapTem protocol
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November 7, 2022 - First appointment with Dr. Rod Pommier, my NETS surgeon - one of the godfathers of NETS surgery
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February 27, 2023 - Taken off of CapTem protocol after 7 rounds due to low platelet counts
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March 3, 2023 - CT Scans showed small tumor growth but raised concerns about a nodule in my left lung (had been there for a while but on this scan the radiologist raised an alarm)
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March 8, 2023 - First Octreotide shot in my butt - used to stabilize NET tumors and stop the growth
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March 10, 2023 - Met Dr. Michael Kilbourne, Thoracic Surgeon - Ordered a PET Scan and Pulmonary Function Test (PFT) for March 17
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March 20, 2023 - PET Scan showed the same for the lung so the decision made to remove the nodule via a VATS Wedge Resection procedure (and confirm a diagnosis during surgery)
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April 19, 2023 - VATS Surgery on the left lung - Nodule was benign (yay!)
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June 9, 2023 - Liver surgery. Removal of the left lobe of my liver and 17 tumors from the right lobe and my gall bladder
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August 4, 2023 - Restart shots of Octreotide to help stabilize my tumors (trying to get Lanreotide but having to work through insurance to do it)
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Current - Scans every 3-4 months including an MRI on my pelvis and abdomen and a CT of my chest. Right now treatment is Lanreotide injection every 28 days
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August 6, 2025 - Began PRRT, targeted radiation for NETs. As of today, 10/21/25, I have had two treatments and will have two more, once every eight weeks
 

Favorite Quotes
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Great things never came from comfort zones - Anonymous
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You haven't come this far to come this far - Anonymous
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Cancer is a gift wrapped in barbed wire - John Saultz
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I skate to where the puck is going to be, not where it's been - Wayne Gretzky
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80% of life is showing up - Woody Allen (?)
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If I'd have listened to what other people wanted I would've invented a faster horse (Maybe Henry Ford - not my favorite human but I do like the quote)
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Every storm runs out of rain - Maya Angelou
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God I'm a dancer, and a dancer dances - A Chorus Line (Greatest musical ever? I think so!)
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If you know the answer, ask bigger questions - No idea who said it but saw it at OHSU and liked it a lot!
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This experience has taught me that life isn't about waiting for the storm to pass, but about learning to dance in the rain - NEC Bill
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Don't let someone who has never been in your shoes tell you how to tie your laces - Anonymous
 
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